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How Bodysuit Shapewear Reduces Effects Of Ehlers Danlos Syndrome

A disorder known as Ehlers Danlos Syndrome “Cutis hyperelastica’, is a condition that basically is a defect in the construction of collagen. This inherited disorder has no quick fix or elixir because the severity of the condition can range from benign to malicious. In common man terms, the condition Ehlers Danlos Syndrome is directly related to those who exhibity extreme hyper mobility, and continuous dislocation of joints. Since there is such a wide range of hyper mobility, about one in every ten thousand to 15,000 falls under the definition of this condition.

Two doctors gave definition to this condition at the turn of the twentieth century, Edvard Ehlers of Denmark and Henri-Alexandre Danlos of France.

Examples of hyper mobility would be circumstances where one can bend their toe fingers all the way down or rotate their arm out of it’s socket and bring it back.

One young girl was born with a severly radical form of this disorder. Three year old Olivia Court, afflicted with the incredibly severe form of this condition, has been through two hip surgeries and has been taken to countless doctors and surgeons in order to find a way to help her walk .

Olivia’s mother and father, Lena, thirty-six, and Adrian, forty-one, a couple based out of Earl Shilton, Leicestershire, were alerted to the condition when Olivia still could not crawl or sit up at the age of one. Taking the advice of medical professionals, Lena and Adrian agreed to corrective hip surgery for Olivia. In spite of these two corrective hip surgeries, Olivia’s condition did not improve. In fact, even when wearing a cast from chest to knees, her hip would dislocate.

With incredibly weak muscles that could not support her joints, Olivia could not walk, sit up, or even crawl. After the two corrective hip surgeries, the doctors and surgeons gave up on Olivia’s condition.

Although doctors told Lena and Adrian Court that their daughter would never walk, the couple were determined to find a way to give their little girl a chance to living a normal life.

And then an answer came from a surgeon. They suggested something like bodysuit shapewear for Olivia. It seemed like a great idea, but it was incredibly expensive. With a price tag of £2,500, this second skin like bodysuit was designed to keep her joints together by strengthening her weak muscles .

However, the Courts were disheartened when they learned that the local NHS Trust would not fund the bodysuit since there was not enough medical evidence to support it’s effectiveness. Thankfully, a local community group raised the money.

The ’second skin’ must be worn five days a week and eight hours a day. Because of the suit, which is made of Lycra, Olivia is not able to lead a normal life.

She now is able to attend nursery regularly without having to stay in bed from chronic fatigue.

Although a new way to treat extreme mobility, it seems bodysuit shapewear has brought about a possible solution.

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